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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009 Posts: 74
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Hi Lyn, Sorry to hear this Lyn, as I like so many on here, have benefitted from your experience and knowledge. I too have thought of leaving the forum, but every so often need the advice and support of others knowing first hand what I am experiencing. Heres wishing you all the very best, and a BIG THANK YOU from me. Candy x
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Rank: Advanced Member
Groups: Registered
Joined: 10/21/2010 Posts: 178 Location: aberdeen
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Oh Lyn, I am so sorry that you have decided to call it quits on here, you, along with a group of regulars made me feel like I'd come home when I was first diagnosed and feeling alone and afraid, either directly responding to my questions or by reading the very sage advice that you have offered on so many occasions to so many people. I knew that everything I read from you Lyn was well researched fact and you have tirelessly given your time and shared your experiences. I respect your decision and like naomi would love to keep in touch with you and doreen and anybody else via facebook (jean is already a friend) I am the only eve van der ende so no problem finding me!! .....eve x
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Rank: Advanced Member  Groups: Registered
Joined: 5/7/2012 Posts: 149 Location: S E London
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Hi Lyn & Doreen, I was saddened when I read both your posts. I would like to thank you for your advice on questions i have asked, being diagnosed earlier this year it was very helpful to find people who had been through the same thing as me. I will certainly miss your posts, just reading about your own struggle has been very informative and it is sad you feel the forum is no longer for you. I wish you all the best and will keep my fingers crossed that maybe you have a change of heart. Best wishes Mary x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009 Posts: 302 Location: Rainham Kent
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Oh my gosh, I feel devastated that you are both leaving this site. you have both kept me sane at times with your humour as well as good advice and common sense. Will have to let my husband believe that fb can be for good. Do take care both of you........In shock Anne
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Rank: Advanced Member  Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Hi Lyn and Doreen - so sorry to hear you're leaving us, I've not been here long but I've come to rely on your advice and wisdom. Lke Naomi I'm baffled about these problems that are mentioned, but I guess that is in the past and it's something that the rest of us will move on from and so it's better if we don't know. It's unfortunate that your post was deleted Doreen, and it may be that someone was over zealous, but I am reassured that this forum is moderated and is one of the reasons that I intend to stay. Having said that, if this post is deleted then I might have to think again - I can be a little outspoken at times and have been known to tread on people's toes, but like Lyn and Doreen I am well-meaning and just want to help my fellow sufferers in some small way and feel accepted as part of the community. I will miss you both and wish you all the best for the future. Sylvia xxx Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Advanced Member
Groups: Registered
Joined: 10/13/2011 Posts: 62 Location: Cirencester
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It is a shame for all of us (and those to come) that experienced/long diagnosed people are leaving.
Whilst I agree, a lot of information is freely available from the internet - most of it does not answer the questions newly diagnosed people have. When it's all new & daunting the most trivial piece of information can cause anxiety - simply because you don't have that information! The forum needs people who have been there, done that & bought the T-shirt to help those of us who have not had much experience. I know, thanks to this forum, that a simple answer to what seems like a daft question can actually make you feel a whole lot better.
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 242
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I am really shocked that you have both decided to leave this site. I have gained a huge amount of advice and support from this forum in the past couple of years.
Lyn, you are a wealth of great information and a huge asset to this forum, inspiring and supporting so many people. Your posts have been invaluable to me and reading all the messages it is obvious you have helped so many people. Looking at the bigger picture, isn't this forum just about offering help to other people in the same position, just being there for others, isn't that what is important?
You will both be sadly missed....
Love Rebecca
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Sorry your leaving to Doreen , the forum wont feel the same  With out you and Lyn , Best wishes Sophie x
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Rank: Administration
Groups: Registered, Administrators
Joined: 3/20/2012 Posts: 87
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The purpose of the NRAS discussion forum is to provide a safe forum for people affected by Rheumatoid Arthritis to share experiences and help each other cope with the challenges of living with RA. The current thread which details speculation and misinformation regarding the dismissal of an NRAS employee, is not an appropriate use of the forum, particularly as the full process open to the employee has not yet run its course. Under the terms of use for the forum NRAS may from time to time edit or remove posts that are contrary to the terms and conditions or not constructive to the overall purpose and mission of NRAS or create a distraction to that purpose and mission. We would ask all members to respect the terms and conditions of the forum.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Well done Emma, you have just divulged information which Lyn and I had purposely kept quiet about!
Neither of us had mentioned that anywhere on this thread, or indeed on the forum.
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009 Posts: 854
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How strange Doreen! Not the past repeating itself is it?
I reiterate all that has been said about my friends, Doreen and Lyn. I completely understand and respect your decisions not to renew your memberships and indeed, I will not be renewing mine either.
It is with much sadness and regret that I have come to this decision as I was one of the very active members of the forum for many years, however, the unprofessional way that the 'trouble' was allowed to escalate a few years ago led to my staying in the background.
Thank you all so much for the wonderful support and advice that I have received over the years. It was a lifesaver finding you all.
XXX
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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I have to agree with Doreen here- not once has anything been mentioned concerning the issues which Emma has written about here. YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009 Posts: 854
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I didn't either Julie, very strange! Goodness knows why anyone thought that it was mentioned , news to most of us! Appears to me that someone is breaking confidentiality here and it was not a member! Shocking! Unprofessional behaviour!
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Rank: Advanced Member  Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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I'm very sad - please can we stop this thread - it's doing nobody any favours Sylvia Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Administration
Groups: Registered, Administrators
Joined: 3/20/2012 Posts: 87
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This issue was directly referred to in two earlier posts in this thread, both of which have since been removed and so they are no longer visible. The statement issued earlier was posted as we had been asked to explain why this was done and to clarify the situation.
Sylvia –thank you for your measured responses, we now hope this discussion has now been resolved.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Sorry you were upset by this Sylvia.
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 1/21/2012 Posts: 388 Location: Powys
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 With no understanding at all, the whole of this episode just feels really sad.  thanks Sylvia. Hope everyone else keeps posting!
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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I am definitely going to keep posting. This forum was a life line to me when I was first diagnosed. I well remember my first post and the encouraging replies and support I received. For existing members and new members it is important that we support each other on this forum. One kind word can go a long way. Keep posting Jackie xx
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Just Caught up on this post. Oh Lynn and Doreen what on earth went on . . .
I can only say I am so sorry that you both are leaving it was been a great place for me especially when I was first diagnosed, although I do not use it as much now.
All the VERY best and hope that your treatment Lynn for RA and heart sorted quickly
My facebook is Rosemary Bell Burnham-on-sea and would be pleased to keep in touch
x Rose
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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I'll be here for a few more weeks yet Rose. I'll look you up on facebook.
Love Doreen xx
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